Bless you Emma -- I can only imagine how you're feeling. Your wife's so damned fortunate to have you in her life!
I had a seizure a few months ago and my husband expressed some of your same fears. We still don't know what caused it, but the neurologist now says it's epilepsy. I'm researching the hell out of it because I've no knowledge of it, or anybody in my family having had it. Not only does it scare me, it frightens the hell out of him (for the same reasons you're afraid). When it happened, he, unlike you, didn't know what to do, so he called 911 and it scared him (and his nephew who was visiting at the time).
How much is this damned pump and why can't your doctors help you get it?? Please keep us up-to-date if you don't mind. Take care, Darlin'!